Showing posts with label migraine. Show all posts
Showing posts with label migraine. Show all posts

Thursday, 28 May 2020

The ongoing struggle of healing

It was naive of me to think I finally had reached that part of my journey when I could lay my head and rest for a while. No, it's nothing dramatic going on, just a minor setback in my mind. It's something I need to get out, as part of the ongoing healing. But I am tired and a migraine now has taken over the normal fibromyalgia pain, and thinking is taking a tremendous effort. 

I'm not sure what caused this mental setback. It could have started when we got back from the pet store to buy supplies for the cats and birthday presents for Little Spottedleaf - she turns 1 on June 19. We both were very tired on the drive home; my boy suffering from a massive hay fever episode, and me from just using up too many spoons in too short a time. Back home I received a phone call that the water butt which I had ordered early March, had finally arrived. By then, the migraine was happily settling and I had difficulty concentrating and thinking, besides the total lack of energy, so no way I was going to crawl behind the wheel again. I asked my ex, since he lives close to the store keeping the water butt. When he arrived at my door, he was joyfully telling me about the virtual drink he would be attending when he got home. Normally he and his colleagues do this every Thursday in real life, but you know, corona. Instead of wishing him a happy time, I answered in a resentful tone, That's the joy of being able to work, right, get-togethers with co-workers; something that people forget about being chronically ill, I don't have that - and I added, silently to myself, I feel so very isolated. And useless, as a person, as a member of society. And then I felt guilty too, because I could not mute the resentment and be more friendly towards my ex, who, after all, had been so kind to get me that water butt.

It also could have started yesterday, on seeing a post of a magnificent artist I follow on Instagram. She only recently started experimenting with watercolour, and I was in awe of those wonderful pieces she created. I felt a pang of sadness, realising I would never be as good as she is. I am too amateuristic, too clumsy and trial&error still - and while I was thinking that, I knew I was being too hard on myself. Later that evening, I did Tara Brach's newly added meditation, Light RAIN in difficult times, and I cried the entire 9.5 minutes - because my difficult time was, yet again, me feeling inadequate and insufficient, falling short on so many aspects of being and accomplishing that I was drowning in quicksand again. 
And I was doing so well, I thought in-between my sadness and the nurturing part of the RAIN technique. I was doing so well, feeling light and capable, and managing boundaries and feeling proud of me. Yet, here I was, huddling in Peach's blanket, sniffling at the hot tears on my trembling hands, trying with an air of desperation to comfort the little girl inside me, mumbling that, YES, she was good enough and that I knew she tried the best she could - but the words felt hollow and I almost saw them fall around me, like fallen leaves in Autumn. 

It also might have started already last week, secretly, on realising that once again I would not be able to handle this month's finances. The ever-present frustration about my financial situation has been a heavy mental and emotional burden ever since I lost my job, so many years ago, but in the beginning it was buffered by my now ex's paycheck and the burden definitely less heavy than it is now. The divorce three years ago put me in much more delicate position, as I left with debts and even though my disability benefits have increased, my tax assessment did too, almost five times as much as I used to pay - or almost 1.5 month's worth of my benefits. Since I was not aware of that, I have been like driftwood on the sea of bills, debts and taxes ever since. If it weren't for the kindness and huge generosity of many people on Instagram, and one lovely woman in particular, I would have been with Social Services ages ago, and they would have managed all my money affairs and taken away my independency and perhaps also my cats and maybe the care of my child. For at that particular time, I even wasn't able to buy bread. I cannot express how deep the shame runs in me, of not being able to take care of my wallet, my bank account - to an outsider it may well seem money is leaking through my fingers, or to put it in my ex father-in-law: That I am a bottomless hole. Yes, I like to buy art supplies, and I did pay for some apps that give me pleasure. I do like to buy bird food if I can, to sustain the wild birds in my garden. And I do buy (expensive, for me) supplements to support my cats' health, as I know they work; and I do the same for myself since medication in itself is not enough - I have spent countless euros on supplements that I hoped would help, most of which did not but now I finally seem to have found the good ones.
But I have lived two years without buying anything for myself - no books, clothes, shoes. I mean, I really AM NOT leaking money through my fingers. Only this year I was able to buy some books for myself, and new bedding, thanks to the generous birthday gifts I received from two of my dearest friends. And thanks to some donations I got from my artwork I finally could buy birthday presents of my own for several other friends. I haven't been able to do so in ... like forever.

I know healing is a journey. I know it takes time, especially because of the severity and intensity of the trauma I endured as a child and long after in adulthood. I know. 
I know the stigma my mother engraved in my bones won't fully disappear. But I hate to hear her voice in my head once more - you are not worthy; you are unfit to deal with reality; you are unlovable; we never expected you to become a mother; you fail as a mother; you are too dumb to even dance before the devil; you have accomplished nothing worthwhile in your entire life; the books you wrote are stupid fairytales, nothing to be proud of; you should stop drawing those idiot sketches, stupid faeries, you live in a fantasy world; you are too sensitive, and weak; yes, I think you are pretty but I have to, because I am your mother. 

I try so hard not to listen. 
But I fear I fail at that too.

Friday, 10 April 2020

I could be writing off my frustrations regarding the total governmental neglect of chronically ill people, but ...

... I refuse. Wholeheartedly. I already addressed my concerns on various occasions, i.e. comments on newspaper articles and additions to questionnaires on global health and well-being in corona times, as well as social media (Instagram, Twitter). The only similar experience came today in the form of a single dad, caring for his 3 children in a co-parenting situation while also managing two jobs. To me, there is no reason to believe our government even realises there is such a group of people who fight every day against their own bodies as their illnesses chronically and invisibly eat away more and more of their health and well-being, meanwhile feeding their depression, anxieties and general feeling of worthlessness.

But I promised not to berate these experiences of mine. Today I want to be light and funny. I barely slept last night, thanks to the migraine that decided to announce itself ten minutes before I went to bed at 9.50pm. I hoped I'd be able to just sleep it off, but Fibromyalgia chose to join forces resulting in me being wide awake, in dreadful pain, at 1.30am. Took my migraine meds at 2, got nauseous about 15 minutes later, and decided then to just call it a day ... night, and opened Merge Zoo to do some mindful candy feeding of my cute little animals. When staring at the same videos ("watch videos to get your reward") for too long and feeling all the more nauseous, I closed the app, put on Sophie Hutchings on Spotify and grabbed my current Terry Pratchett. I read till 4am. Ish. The final time I looked at the clock, was 4.45am.

Painsomnia is a terrible thing. It deprives the body of the so necessary sleep and causes even more pain, making the next day a trial of pure adrenaline, only to backfire as the day progresses. And regardless of knowing this, it will still hit me like a sledgehammer. It could not have come at a worse time either, for in three days my son will return and I'll need a lot more spoons than the shortage I start my days off with lately.

In a couple of minutes, my friend will join me for a walk in the nearby fields and meadows, to get some fresh air and also just to be with each other, respecting social distancing ruling, naturally. Although we both suffer from Fibromyalgia, she has it in a much milder degree than I do - for instance, she can still work and do a bunch of activities I had to let go of. Today, she texted me her pelvis and lower back are hurting - yesterday she had this wild plan to go somewhere on our bikes and hike there, but there you go: with a chronic debilitating illness like Fibromyalgia, we have to take it day by day, and need to be extra careful in planning activities and outings beforehand. Most people do not get that - it is why friendships with healthy people can get quite tricky, as the lack of empathy and acceptance starts weighing on the spoonie, just when they need unconditional support the most

But, light and funny it is to be, right?
Let me get back to you after my walk in the fields 😁